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Pierre Robin Sequence (PRS)

Pierre Robin Sequence (PRS) is a condition where babies are born with a cleft palate and a small lower jaw which can cause breathing and feeding difficulties in early life. This page explains how it happens, how it's treated, and what support is available.

Feeding babies born with a cleft

Information and support for feeding babies born with a cleft, including bottle-feeding, breastfeeding, and expressing.

Find support over the holidays

CLAPA will be 'closed' while our team take a break over the festive period. Learn how to find support over that time and when our services are due to re-open.

A mother holds a baby with an unrepaired cleft. The baby it looking to the camera with a big beautiful smile.

Antenatal diagnosis

Find information and support if you've had a diagnosis of cleft at an antenatal scan

A man holds a baby with an unrepaired cleft lip

Cleft repair operations

All about cleft lip and cleft palate repair operations, including top tips from other parents and carers, how to prepare for your baby going into hospital, and frequently asked questions.

A mother holds a baby with an unrepaired cleft. The baby it looking to the camera with a big beautiful smile.

Postnatal diagnosis

Find information and support if you've had a diagnosis of cleft after your baby was born.

CLAPA’s History

CLAPA was set up in 1979 as a partnership between people affected by cleft and health professionals. Since then, CLAPA has grown into a national charity which is well-respected in the cleft world as the voice of patients and parents. This page goes through our history as an organisation.

Contact CLAPA

Find out how to contact CLAPA and how to get answers for the most common questions.