Consulting Services

The NHS Health Research Authority has issued a joint statement on the importance of embedding public involvement in health and social care research.

CLAPA can support your PPI efforts and work with you to make your study more accessible to the cleft community. We offer a Consultancy Service where researchers and NHS Cleft Teams can pick from a range of support packages, or create your own bespoke package to fit your needs. For those without funding for this work, we offer a bursary to ensure you can still get the support you need.

You can read a summary of the packages available for researchers or NHS Services below or download the Information Pack for full details.

If you have any questions, please contact Gillian McCarthy, CLAPA External Engagement Coordinator, at [email protected].

Consultancy Fees and Bursary Information Pack (PDF)

Make an enquiry about CLAPA’s Consulting Services

Why choose CLAPA?

CLAPA has over 40 years of experience in helping the cleft community use their voices to impact on the future of cleft care. We have direct access to a large community of patients, parents, carers, and other family members affected by cleft, including a large social media following and emailing list, several dedicated focus groups, and CLAPA Voices.

Thanks to our wide reach, independent status, and the skills and experience we have cultivated in-house, we are uniquely placed to support people wishing to work with the UK’s cleft community.

“CLAPA have been invaluable in helping our research to reach the wider cleft community. Their enthusiastic support in sharing information about our research has contributed significantly to our research’s recruitment and I would hope that their consultancy will be able to help shape the research activity of my team and wider colleagues in the future”

Packages for Researchers

The details of each package can be found in our Information Pack.

Advertising Research Study (Basic)

Promoting your study or initiative on our website

Cost: FREE

Recruiting Participants

Advertising for patients to join a research study by reviewing the materials and promoting the study through our digital channels

Cost: £227.50

Study Advisory Group

Setting up a Study Advisory Group to provide feedback on a research idea, including recruiting participants, reviewing all documents and facilitating a single meeting. Extra meetings are also available at an additional cost.

Cost: £455.00

Bespoke Work

CLAPA can put together a bespoke package to suit your needs. This work will be completed at the following rates:

  • ½ day (minimum) £227.50
  • Full day £455

Make an Enquiry

Make an enquiry about CLAPA’s Consultation Services

More information on consultancy packages for researchers

Packages for NHS Services

The details of each package can be found in our Information Pack.

Single Patient Engagement Group Meeting

We will organise, recruit for and facilitate a single online meeting. Setting up a Patient Engagement Group to provide feedback on a topic of your choice, including recruiting participants, reviewing all documents and facilitating a single meeting. Extra meetings are also available at an additional cost.

Cost: £455 (1 day)

Full Patient Engagement Group Set Up & Management

As above, we will set up and manage a new PEG group for your NHS service for one year (max 3 meetings).

Cost: £2,275.00 (5 days) or £1,820 with CLAPA’s bursary subsidiary

To encourage new NHS Service PEGs, CLAPA is providing a bursary of £455 to subsidise the cost of setting up a new group.

Attend Single Meeting

A CLAPA representative will act as the voice of the cleft community in a single steering group meeting, Clinical Excellence Network meeting, or any other relevant meeting.

Cost: From £227.50

Patient Representative for Interview Panel

We can recruit a patient with relevant lived experience to sit on an interview panel when recruiting new staff

Cost: £227.50*

* Researchers/Services are responsible for paying the PPI representatives for their time (if appropriate) and any out of pocket expenses such as travel.

Bespoke Work

CLAPA can put together a bespoke package to suit your needs. This work will be completed at the following rates:

  • ½ day (minimum) £227.50
  • Full day £455

Make an Enquiry

Make an enquiry about CLAPA’s Consultation Services

More information on consultancy packages for NHS Services

Bursary

The CLAPA PPI Bursary has been set up to support researchers and clinicians working within cleft research and NHS Cleft Teams who wish to increase and improve their PPI.

Applicants who are unable to access funds elsewhere can apply for a bursary of up to £455 worth of support from CLAPA’s Consultancy Service. If applicants are successful, the agreed bursary will entitle the recipient to receive PPI services from CLAPA up to the maximum value of £455 only. The bursary is not redeemable for cash.

Who is eligible?

  • An undergraduate or postgraduate student who has the support of a university and/or clinical team and a named supervisor. You will be asked to provide a supporting statement & signature.
  • A researcher/clinician initiating a one-off project/a pilot study/initial PPI work that will lead to an external grant.
  • Researchers looking to develop their research question and materials before applying for funding and seeking patients views on the research.
  • Cleft Teams/NHS clinicians wishing to involve patients/patient representatives in service development.

To learn more and apply, see CLAPA’s Consultancy Services and Bursary Information Pack.

Interested in supporting this work? Apply to join the Bursary Panel to help CLAPA decide which projects we should support.

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