News and Stories

Researchers at the University of Sheffield are looking for parents of children who were born with PRS (Pierre Robin Sequence) to take part in a study advisory group on oral health.

Dad Dave recently raised more than £3,600 for CLAPA - cycling 400 miles in just three days as part of the ‘Handlebarmyarmy’. 

We’re looking for a new Communications Manager.

CLAPA is still waiting to speak directly to NHS England regarding cuts to specialist training fellowships for cleft surgeons, after receiving a short response from the Government to our letter of concern. 

Are you a student counsellor currently training on a recognised counselling or psychotherapy course (Level 4 or above)? CLAPA offers remote counselling placement opportunities for student counsellors who would like to gain experience supporting individuals and families affected by cleft.

Kate tells her story about Harry's cleft diagnosis and how CLAPA's support was so invaluable she became one of our volunteers.

Members of CLAPA’s management team recently sat in on a cleft clinic hosted by the South West Cleft Service - and tested out their new hi-tech speech investigation assessment suite. 

We were pleased to have the opportunity to submit evidence to the Committee and hope our recommendations help ensure the reforms continue to support high-quality, equitable care for everyone affected by cleft.

In this research paper, Kingston University researchers explore the process of resilience for children with a cleft lip and/or palate (visible difference) starting secondary school in the United Kingdom.

“This response reinforces why the campaign remains necessary - and why we'll continue to work on this issue while our concerns remain unresolved."

Firefighter Rich recently shared his story of growing up with a cleft in CLAPA's latest Cleft Youth Magazine.

“The Appearance Matters conference was a great opportunity to share our findings with peers in the sector, from across the UK and internationally."