Tagged with:Parent Stories
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Oakley’s cleft palate saves his life
Two-year-old Oakley has Apert Syndrome, a rare genetic condition that causes fusion of the skull, hands and feet bones. He was also born with a large cleft palate, which saved his life when his other airways became obstructed.
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Baby Finn’s moment of fame in advertising campaign
Next time you’re out shopping look up at the video boards and you might just see one of our CLAPA community babies advertising Pampers nappies.
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Sarah and Luca’s Story
Sarah Mahone got in touch with CLAPA over Cleft Lip and Palate Awareness Week this year to share her journey with her son Luca, who was born with a microform cleft lip.
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Kaitlynn and Wyllow’s Story: Share A Smile
Wyllow was born with cleft lip and palate. Her mum, Kaitlynn, shares their story with CLAPA.
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Rebecca’s Story
A guest blog from Rebecca providing cleft lip help and support from a parent's perspective to help other parents.
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Matt’s Story
I saw an advert for CLAPA Dad's Club and thought that would be perfect for me. Not only is it an opportunity for me to start to give back on all the support received, but I think dads generally don't talk much as a group, and hopefully, this can start to be the change of that.
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Francesca’s Story
Francesca's daughter Eva was born with a left-side cleft lip, palate, and gum notch. She shared their journey with us and what inspired her to set up an Instagram page to raise awareness.
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Linsey Smart and family completed the Aberdeen Kiltwalk raising £1,500 for CLAPA
Linsey Smart and family completed the Aberdeen Kiltwalk on the 4th of June, raising £1,500 so far in honor of Theo
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Lucy’s Story
During her pregnancy, Lucy found support by reading stories from other parents. Today she wanted to share her story to help others on their journey.
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Kate and Sam’s Story
Kate and Matt's son Max was born with a bilateral cleft lip and palate. She explained the support she received from CLAPA and our community and how it inspired her to fundraise.
