Tagged with:Parent Stories

  • Ellie’s Story

    7 Nov 2022

    Phoebe was born with a complete unilateral cleft lip, cleft palate, and alveolar gum notch. We received Phoebe's diagnosis, as many do, at our 20-week scan. 

  • Emma’s Story

    11 Oct 2022

    Emma's son Bertie was born with a unilateral cleft lip and gum notch. She reflects on their journey from sharing Bertie's diagnosis with her wedding guests to adjusting to his new smile.

  • Jamie’s Story

    26 Sep 2022

    The news that our unborn child had a cleft lip and possibly a cleft palate was the scariest day of our pregnancy. We had no idea what it would mean for Charlie once he arrived in the world and the huge hurdles that might lie ahead.

  • Elizabeth’s Story

    16 Sep 2022

    Elizabeth’s son Albie was born in December with an incomplete bilateral cleft lip and palate. Sarah looks back at their journey and the support they received along the way.

  • Dionne’s Story

    5 Sep 2022

    Dionne's son Ffredi was born with a unilateral cleft lip and palate. She shared their journey with us and the challenges they faced along the way.

  • Dionne’s Story

    5 Sep 2022

    Dionne's son Ffredi was born with a unilateral cleft lip and palate. She shared their journey with us and the challenges they faced along the way.

  • Sue’s Story

    27 Jun 2022

    Sue's grandaughter Jessica was born with a cleft lip. She shares their journey from a grandparent's point of view and the involvement she experienced with her family.

  • Nathan’s Story

    31 May 2022

    Michelle's son Nathan was born with a cleft lip and palate. She shares how proud she is of him throughout his journey, from multiple surgeries and following his dream career.

  • Jerry-Leigh’s Story

    19 May 2022

    Charlie was diagnosed with a cleft lip & bilateral talipes at our 20-week scan; he measured a small head, which made professionals think there was more to it than what meets the eye.

  • Theresa’s Story

    18 May 2022

    I guess our story begins where most others do. We found out our baby has a unilateral cleft lip & palate at our 20-week anomaly scan. At first, Tom & I weren't really that bothered - we didn't know much about it; apart from that, it affected how a child looks and can be fixed.