Tagged with:Parent Stories
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Georgia’s Story
Georgia's sons, Theo and Jude, were both born with a cleft, 6 years apart. In this powerful piece, Georgia looks back on her experiences of diagnosis, feeding and surgery, hoping to reassure other parents and carers who might be going through similar experiences.
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Helen’s Story
Helen, who is now 89, has been supporting CLAPA with our Christmas cards for years. She reflected back on her experiences as a parent of a child who was born with a cleft palate, and has kindly shared her story with us.
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Poppy’s Story
10 year old Poppy, who was born with a cleft and Pierre Robin Sequence, recently placed 4th in the English School Nationals for running! She is sharing her story to inspire others to follow their dreams and do what they love.
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Clare’s Story
After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!
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Eleanor’s Volunteer Story
This Volunteers' Week, we are celebrating our dedicated volunteers. Without them, so much of our work would simply not be possible. Eleanor is one of our fantastic Parent Supporters, and here's her story.
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Sophie and Alfie’s Challenge
During Awareness Week, Sophie and her son Alfie raised over £1,000 for CLAPA! Sophie told us about their incredible fundraising and has kindly shared her family's story so far.
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Sarah, Dave and Sean’s challenge for CLAPA
Sarah's daughter Alice was born with a cleft lip and palate. Sarah looks back at their journey so far and tells us about some of the incredible ways her and her family have fundraised for CLAPA over the last two years.
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Teddy’s Triathlon for CLAPA
7 year-old Teddy's little sister was born with Pierre Robin Sequence and a cleft palate. Teddy wanted to do something to help, so to mark the start of Awareness Week he completed a triathlon for CLAPA!
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Kayleigh’s Story: an update!
Though my first thoughts when I found out about Sydney having a cleft were very mixed, I now couldn’t be any prouder if I tried. I had nothing to worry about, my little girl is amazing, she’s full of sass and confidence and I hope she stays this way!
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Anneka and Aria’s story
Anneka's daughter Aria was born with Pierre Robin Syndrome. Now that Aria is two years old, Anneka reflects on their journey and has a strong message for other parents: 'please know it gets better'.
