Tagged with:Parent Stories
-
Kayleigh’s Story: an update!
Though my first thoughts when I found out about Sydney having a cleft were very mixed, I now couldn’t be any prouder if I tried. I had nothing to worry about, my little girl is amazing, she’s full of sass and confidence and I hope she stays this way!
-
Anneka and Aria’s story
Anneka's daughter Aria was born with Pierre Robin Syndrome. Now that Aria is two years old, Anneka reflects on their journey and has a strong message for other parents: 'please know it gets better'.
-
Joanna and Harry’s story
Joanna's son Harry was diagnosed with a Cleft Lip and Palate when she was pregnant in 2009. Joanna recently got in touch with CLAPA to share their story, and looks back at Harry's resilience and determination over the years. She says, 'He knows he’s not alone. He knows he’s in the 1 in 700 club!'
-
Amelia’s Story
Amelia is part of CLAPA's Board of Trustees. Our Trustees are a small group of volunteers who take responsibility for governing CLAPA as a charity and directing how it is managed and run. CLAPA's staff look after the charity's day-to-day work, but our Board of Trustees ensures everything we do is governed and directed by the cleft community.
-
#MyCleftStory a year on, through the eyes of Casper’s mummy
"What did that mean? Did that mean Casper would need more palate surgery? Did that mean Casper’s speech would still not develop? Again, I was overwhelmed and hit by a pang of too many emotions and my role of mummy being tested." In honour of Awareness Week, Jemma shared with CLAPA her experiences with her son, Casper over the past year.
-
CLAPA’s Weather Lottery Jackpot Winners Share Their Story
CLAPA was thrilled to be able to thank Mary and her family so much for supporting CLAPA, presenting them with a cheque for their CLAPA's Weather Lottery winnings of £25 000. She was even kind enough to make a donation to CLAPA from her winnings.
-
Kayleigh’s Story
"The truth is you never really know what your baby will look like until they are placed in your arms. I’m not going to sit here and lie, I was nervous about seeing her for the first time, but I had nothing to worry about. She was and still is absolutely perfect, cleft lip, cleft palate and gum notch included, this little girl was amazing, and I fell in love with her and her perfect imperfection instantly."
-
Ben’s Story
Ben's dad, Mark, got in touch with CLAPA to share how proud he is of his son, who was born with a cleft lip and palate in 2001.
-
“Sometimes it is just nice to know you are not alone.”
One mum got in touch with CLAPA to share the story of her and her baby's diagnosis, and to highlight the importance of knowing you're not alone when you or a loved one is affected by cleft.
-
Laura’s Story
As her son approaches his teens, Laura remembers her pregnancy and looks back on some of the challenges he has faced and considers what's still to come.
