Tagged with:Parent Stories
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Elizabeth’s Story
"I remember when I went to see Isaac in recovery and didn’t know what to expect and I was terrified but after a few hours he was even trying to smile and I feel in love with him all over again. Although to this day, I will always miss his wonderful cleft smile."
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Katie’s Story
"Cody has had his first surgery and although we miss his wide smile we are head over heels in love with his newest look. We really enjoyed the walk at the weekend and look forward to more events in the future."
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Jasper’s Story
"I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."
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Things Can Only Get Better
From the first contact, CLAPA have supported me giving me advice and reassurance through my ante-natal tests, the birth, the many appointments and subsequent surgeries my baby had to undergo and the difficult learning curve of feeding a cleft baby. I don’t think I could have got through it without them and I know my son, now an adult, still enjoys interacting with the CLAPA community via social media.
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Scott’s Story
Scott was born with a cleft lip and palate. His very proud mum has written about the first 24 years of his life to celebrate Scott graduating from medical school
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Joanne’s Story
I'm Joanne Graham, married to Alex and have 2 beautiful sons; Noah, 2 and Isaac, who was born on 1st July 2014 with a unilateral cleft lip and gum notch. We live in South Shields, near Newcastle upon Tyne.
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Maz Poole’s Story
Find out about Maz Poole's experiences as the Norfolk and Suffolk Happy Faces Coordinator and a CLAPA Parent Contact.
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Lily’s Journey
Over the next couple of weeks we learned more about the condition and how to handle our baby confidently and then the shock question came! Which one of us parents would insert the NPA tube and feeding tube when Lily goes home?
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My Parent Contact
"When I talked to Mel I didn't know [my daughter]. I didn't know how resilient she would prove to be and how much strength her smile would give me. I needed to feel that I could do this - and that is exactly what Mel made me believe."
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The Hancock’s story
"The operator told us that our baby had a cleft lip and that this maybe associated with some syndromes that may mean that the baby may not survive. The whole thing was handled rather badly. We left the hospital in a state of shock and little information."
