Tagged with:Research Summaries
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Research Summary: Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their emotional wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research Summary: Visible Difference and Equality Law
Earlier this year, researcher Hannah Saunders interviewed a number of adults with a visible difference about their experiences in the workplace to learn more about if law does enough to promote the equality of people with a visible difference. Here, she presents a summary of her findings.
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CLAPA Presents at European Cleft Conference in Utrecht
Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.
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The Psychosocial Impact of Cleft on Grandparents
The aim of this study was to explore the experiences and potential support needs of grandparents of children born with CL/P to inform future service provision.
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A Day at the Cleft Collective
On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.
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Adults’ Project Roadshow Report
CLAPA ran 12 focus groups around the UK where adults born with a cleft shared their experiences, uncertainties and hopes for cleft treatment and support. Learn about what came up and what we plan to do next.
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CRANE Report 2017
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SLUMBERS – A Sleep Study
The Side Lying and Upper airway Maintenance in Babies Requiring Surgery for cleft palate, or SLUMBERS study, is a feasibility study that CLAPA has coordinated with frequently during the research process. The purpose of the study was to address the fact that general NHS guidelines for how babies can be put to bed to sleep most safely may not be the safest guidelines to follow for babies with a cleft lip and/or palate.
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Education and Cleft: Educational Impact Study 2017
Educational experiences contribute significantly to a young person’s development, both during the school years, and in the longer term. Qualitative research may help us to understand this relationship better, by exploring people’s experiences in depth.
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CLAPA News 2017
Welcome to our 28th annual magazine, packed full of stories and updates from all sectors of the CLAPA Community. Read it now online or order your paper copy.
