Tagged with:Research
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CLAPA Cleft Collective Patient Consultation Group
The Cleft Collective cohort studies recruit families of babies and children born with a cleft across the UK. Families who participate provide biological samples (such as saliva) and complete questionnaires about themselves and their children at different ages.
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CLAPA Voices: Opportunities
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New Membership Opportunity
The Cleft & Craniofacial Conditions CSG is currently seeking parents and carers to join its membership to help ensure that studies into these areas of specialty are developed and carried out to best meet the needs and wishes of children and young people and their families.
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New Opportunity: Join the CLAPA Adult Services Focus Group (online)
Are you passionate about the support CLAPA gives to adults born with a cleft?
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Research Opportunity: Your Experiences with Health and Social Care During the Pandemic
Health and Social Care Alliance Scotland (ALLIANCE) has commissioned a research project looking at disabled children and young people's access to support during the pandemic.
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Research Opportunity: Disclosing Facial Differences
The Centre for Appearance Research (CAR) is looking for adults to complete an online survey on the topic ‘disclosing facial differences.’
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Research Opportunity: Spires Cleft Centre Research Project
A team of Clinical Psychologists working at the Spires Cleft Centre in Oxford are currently running a research project looking at the impact of being born with a cleft lip and/or palate on feeding behaviour later on in childhood.
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Research Opportunity: Assessing Aesthetic Outcomes Following Cleft Lip Surgery
Researchers from Newcastle Cleft Team need people affected by cleft to join their Patient Consultation Group for a new project - apply ASAP!
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Research Opportunity: Shape the future of cleft research (CLOSED)
CHNRI Cleft are an international interdisciplinary collaborative group, working to identify global research priorities for cleft lip and palate for the next 10 years. This is your chance to feed into this process.
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National Cleft Development Group Patient Engagement Group
Are you interested in NHS cleft care services in the UK? Would you like to have a say about how cleft services are provided and developed? The Cleft Development Group (CDG) are currently inviting applications from people to join their new Patient Engagement Group.