Tagged with:Research
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National Cleft Development Group Patient Engagement Group
Are you interested in NHS cleft care services in the UK? Would you like to have a say about how cleft services are provided and developed? The Cleft Development Group (CDG) are currently inviting applications from people to join their new Patient Engagement Group.
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Research Opportunity: Speech Outcome Measurements at GOSH
Children and young people born with a cleft and their parents are invited to take part in Engagement Groups looking at the 'Outcome Measures' used in Speech and Language Therapy at Great Ormond Street Hospital. There will be three Engagement Groups held over zoom; one for parents and carers, one for young people (12-20 years old), and one for children (9-11 years old).
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Cleft Care Scotland Patient Engagement Group
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Research Opportunity: Young people’s experiences with appearance and body image
The Centre for Appearance Research has launched a new study called TABI (Teen Appearance and Body Image) to explore young people’s experience of appearance and body image using an online survey.
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Research Summary: Treatment Decision Making in Adults with Cleft
This article summarises the results of a new paper on treatment decision making in adults who were born with a cleft, covering adults’ surgical experiences, feelings and concerns with dental care, desire for further treatment, and awareness of entitlement to NHS services.
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Research Opportunity: Experiences of Somali people with visible facial differences
A new study is looking for Somali people with visible facial differences. Waxaan doonay inaanu was ogaano raad-reebka dadka Somalida ah ee wejigoodu duwanyahay
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Research Opportunity: How has Adult Cleft Care Been Impacted by COVID-19?
Are you an adult (16+) whose cleft care was impacted by COVID-19? The Centre for Appearance Research would love to hear about your experiences of treatment over the pandemic.
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Research Opportunity: Ethical Decision-Making in Care During the Pandemic
Parents, carers and grandparents involved with receiving care from maternity or children's surgery services during the pandemic are invited to take part in a focus group discussion about their perception of how services were organised and delivered.
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Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)
Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.
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Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
