Tagged with:Research
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Research Opportunity: Parents’ & carers’ experiences of children with appearance-affecting conditions
A new research project is investigating ways to support parents and carers of children and young people affected by appearance affecting conditions/injuries, such cleft lip.
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Research Opportunity: Parents Experiences of Decision-Making About Orthognathic Surgery
A researcher with the University of East Anglia is hoping to interview parents of those who have undergone orthognatic surgery, also called 'jaw surgery' or an 'osteotomy'. This is to learn more about how parents experience the decision-making process around this surgery, with the hopes that it will feed into the NHS treatment pathway.
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Research Summary: Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their emotional wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research Opportunity: People with Nasal Speech
A Speech and Language Therapist with Salisbury Cleft Team is helping to produce and evaluate a device called a 'nasal obturator' which is designed to help people with nasal speech.
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Research Summary: Visible Difference and Equality Law
Earlier this year, researcher Hannah Saunders interviewed a number of adults with a visible difference about their experiences in the workplace to learn more about if law does enough to promote the equality of people with a visible difference. Here, she presents a summary of her findings.
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CLAPA Presents at European Cleft Conference in Utrecht
Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.
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The Psychosocial Impact of Cleft on Grandparents
The aim of this study was to explore the experiences and potential support needs of grandparents of children born with CL/P to inform future service provision.
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Research Advert (Yorkshire and the Humber): Exploring young adults’ experiences of growing up with a facial difference
Are you a young person aged between 18 –25? Do you identify as having a facial difference? Do you have a story to tell about your experiences of growing up? This could be the research project for you.
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A Day at the Cleft Collective
On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.
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Adults’ Project Roadshow Report
CLAPA ran 12 focus groups around the UK where adults born with a cleft shared their experiences, uncertainties and hopes for cleft treatment and support. Learn about what came up and what we plan to do next.
