Tagged with:Research
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SLUMBERS – A Sleep Study
The Side Lying and Upper airway Maintenance in Babies Requiring Surgery for cleft palate, or SLUMBERS study, is a feasibility study that CLAPA has coordinated with frequently during the research process. The purpose of the study was to address the fact that general NHS guidelines for how babies can be put to bed to sleep most safely may not be the safest guidelines to follow for babies with a cleft lip and/or palate.
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Joining the Cleft & Craniofacial Conditions Clinical Studies Group
Would you like to influence research into treatment for children with cleft and craniofacial conditions in the UK? The Cleft & Craniofacial Conditions Clinical Studies Group is currently looking for Adult patient/Parent/Carer members.
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Education and Cleft: Educational Impact Study 2017
Educational experiences contribute significantly to a young person’s development, both during the school years, and in the longer term. Qualitative research may help us to understand this relationship better, by exploring people’s experiences in depth.
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CLAPA News 2017
Welcome to our 28th annual magazine, packed full of stories and updates from all sectors of the CLAPA Community. Read it now online or order your paper copy.
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Tell Us Your Story
The Centre for Appearance Research is looking for parents of a child with a cleft aged between three and four in the UK. You will be invited to take part in a one-to-one telephone interview with a researcher about your experiences of having a child born with a cleft.
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Survey: 16-18 Year Olds With a Cleft
Get a free £10 Amazon Voucher when you take part in this short questionnaire about your experiences of being born with a cleft lip and palate! Matthew is a researcher looking into resilience and how to help young people like you cope better with any challenges they face growing up.
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Is Your Child Starting Secondary School this Year?
A new in-depth study will follow a number of young people born with a cleft throughout their first year of Secondary School to look at how they adapt to the challenges of being in a new environment like this. The results could help the NHS and charities like CLAPA better support young people at this time in their lives.
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Research Opportunity – PEG Feeding Tubes
Are you a patient or a caregiver for someone using PEG feeding tubes? £100 incentive for 90 minute in home interviews for people with or providing care for someone using PEG Feeding Tubes.
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The Community’s Role in Research
Our Children and Young People's Council do more than just play games and eat pizza - they also spend their meetings making a real difference to others born with a cleft like them! In a new video put together for the Appearance Matters 7 Conference, the CYPC share what CLAPA and its work means to them.
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How Volunteering Helps You Take Control
Since becoming a CLAPA Volunteer in 2011, Rachel has been an outspoken advocate for improving care, awareness and research around cleft lip and palate in the UK. For the 9th day of #VolunteersWeek we're celebrating the ways in which volunteering can help you turn something difficult into an opportunity for growth and positivity by taking control of your situation.
