Tagged with:Your Stories
-
National Volunteers Week
June 1-12 is National Volunteers Week, celebrating the people that allow charities like CLAPA to keep working hard all over the UK.
-
ICHOM 2016 – A Patient’s Perspective
The ICHOM are an organisation aiming to standardise the ways we measure outcomes for health conditions around the world, including cleft lip and palate. Our very own Chris Williams represented cleft and CLAPA at their latest conference, and here he blogs about what he took away from the experience.
-
Luke’s World
"Our little treasure arrived on Thursday 7th March 1996 weighing a healthy 7lb 13oz! Dad helped to deliver and was there to see that Luke was that extra bit special. I remember him being placed on my tummy and saying “aaww look…he has a cleft lip”. His Dad just said “I know kiddo…but we’ll be alright”."
-
Amanda and Amy’s Story
It was a complete shock to us as anomaly scans were not available then and I felt to be honest, extremely isolated and lonely as I really didn’t have any support from anyone except the hospital staff and of course my family and friends at that time. It also felt really scary.
-
Elizabeth’s Story
"I remember when I went to see Isaac in recovery and didn’t know what to expect and I was terrified but after a few hours he was even trying to smile and I feel in love with him all over again. Although to this day, I will always miss his wonderful cleft smile."
-
Katie’s Story
"Cody has had his first surgery and although we miss his wide smile we are head over heels in love with his newest look. We really enjoyed the walk at the weekend and look forward to more events in the future."
-
Ignorance Hurts
On day four of Awareness Week, we're excited to introduce a new project exposing the reality of cleft lip and palate in the UK.
-
Jasper’s Story
"I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."
-
Suzzie’s Story
Suzzie was born with a cleft lip and palate in 1989. This is her story about growing up with a cleft, dealing with multiple surgeries, and how she learned to love what makes her unique.
-
#MyCleftStory
Whatever your connection to cleft, whatever your experience, we want YOU to join our conversation this Awareness Week and help us get everyone talking about cleft. All you have to do is share your story on Facebook or Twitter using the hashtag #MyCleftStory.
