Tagged with:Your Stories
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Ignorance Hurts
On day four of Awareness Week, we're excited to introduce a new project exposing the reality of cleft lip and palate in the UK.
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Jasper’s Story
"I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."
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Suzzie’s Story
Suzzie was born with a cleft lip and palate in 1989. This is her story about growing up with a cleft, dealing with multiple surgeries, and how she learned to love what makes her unique.
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#MyCleftStory
Whatever your connection to cleft, whatever your experience, we want YOU to join our conversation this Awareness Week and help us get everyone talking about cleft. All you have to do is share your story on Facebook or Twitter using the hashtag #MyCleftStory.
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Things Can Only Get Better
From the first contact, CLAPA have supported me giving me advice and reassurance through my ante-natal tests, the birth, the many appointments and subsequent surgeries my baby had to undergo and the difficult learning curve of feeding a cleft baby. I don’t think I could have got through it without them and I know my son, now an adult, still enjoys interacting with the CLAPA community via social media.
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Sandra’s Story
Sandra was born with a cleft lip in the 60s, and in 2014 underwent major surgery which included a septoplasty, rhinoplasty, an alveolar bone graft and a lip revision.
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My Summer of Fun…aka Jaw Surgery!
Right, so on 12th July 2013 I had jaw (orthognatic) surgery as my bottom jaw was further forward than my top; creating an underbite which I have been unhappy with since before I can remember. I was excited, but extremely apprehensive, for the surgery because it is known to be a pretty big one which casues quite a lot of pain and discomfort.
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My Volunteer Story: Danielle
My name is Danielle Keohane and I was born with a bilateral cleft lip and palate. Sounds like a confession I suppose! I'm not going to pretend I'm completely happy and proud of my cleft, but I'm no longer shamed of it, which has got to be a good thing!
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Brave Lennon, age 8, takes on Man Size Challenge!
This is the remarkable story of Lennon, age 8, who took part in the Junior Iron Run to say thank you to CLAPA!
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Birthday Party in the Park
Birthday Party in the Park took place in a sunny Sutton Park on Sunday 20th September. The event was organised by the Cleft team at Birmingham Children's Hospital with support from CLAPA
