News
News and updates from across every CLAPA region
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Adult Stories | Children & Young People's Stories |
Bronwen’s Story
After discovering people on YouTube talking about their own experiences of growing up with a cleft, Bronwen was inspired to set up her own channel. In talking about a range of topics, from surgery to dealing with stares and questions, she hopes to raise awareness of cleft and ensure others born with a cleft feel less alone.
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Research | Research Advertisements | Volunteering Opportunities |
National Cleft Development Group Patient Engagement Group
Are you interested in NHS cleft care services in the UK? Would you like to have a say about how cleft services are provided and developed? The Cleft Development Group (CDG) are currently inviting applications from people to join their new Patient Engagement Group.
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Fundraising Stories | Parent Stories |
Ashleigh, Brad and Arthur’s Story
From diagnosis to lip repair surgery and raising £2,500 for CLAPA, Ashleigh reflects on Arthur's cleft journey so far and hopes for a world where more people are cleft aware.
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Adult Stories | Fundraising Stories |
Michelle’s Story
Michelle was born with a cleft lip and palate and sees donating to CLAPA as a legacy she’ll leave behind for others with similar experiences. We caught up with her to hear more about her journey and her reasons for supporting our work.
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Research Summaries | Updates from CLAPA |
Summer Survey 2021: The Results
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Parent Stories |
Rebecca and Nina’s Story
Any parent or carer in the cleft community will have vivid memories of their child’s cleft surgeries, as well as all the worries that these bring. One year on from her daughter’s cleft palate repair surgery, Rebecca remembers the lead up to the operation as well as the unique stresses brought on by the Coronavirus pandemic.
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Research | Research Advertisements |
Research Opportunity: Speech Outcome Measurements at GOSH
Children and young people born with a cleft and their parents are invited to take part in Engagement Groups looking at the 'Outcome Measures' used in Speech and Language Therapy at Great Ormond Street Hospital. There will be three Engagement Groups held over zoom; one for parents and carers, one for young people (12-20 years old), and one for children (9-11 years old).
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Adult Stories |
Michael’s Story
In reflecting on his 20 years of treatment at Great Ormond Street Hospital, Michael, who was born with a bilateral cleft lip and palate, composed two music pieces of music: his Great Ormond Street Hymn, and Symphony No.1. Click to learn about his cleft journey and find out why he wanted to write music.
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Research | Research Advertisements |
Cleft Care Scotland Patient Engagement Group
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Research | Research Advertisements |
Research Opportunity: Young people’s experiences with appearance and body image
The Centre for Appearance Research has launched a new study called TABI (Teen Appearance and Body Image) to explore young people’s experience of appearance and body image using an online survey.
