News

News and updates from across every CLAPA region

  • Regional Coordinator for East of England

    31 Oct 2017

    This post will be the first point of contact for CLAPA’s regional services in the East of England. The post holder will work with Branches and individual volunteers to organise local events and activities such as family fun days, summer picnics, and Christmas parties.

  • NHS Cleft Services | Research Summaries |

    Cleft Care in the UK: Where Are We Now?

    31 Oct 2017

    At the turn of the century, UK cleft services were centralised into the Cleft Teams we know today. Now, a new study reveals which treatment outcomes have improved since then - and which are still lagging behind.

  • Overseas |

    The City Cambodia Project 2017: Week 7

    30 Oct 2017

    "On Thursday it was day two of our time on the Smile Cambodia mission. The team were all happy to see us again and had another list of patients for us. Alongside seeing patients in our therapy room, we also visited patients post-surgery on the wards to give advice. The mission made us feel very valued as we really felt that the team were interested in hearing what we had to say."

  • Fundraising Stories | Fundraising: Community |

    #FundraisingFriday – Golden Phizzwizard

    27 Oct 2017

    "In the words of Roald Dahl, yesterday was a ‘Golden Phizzwizard’ of a day as we all truly enjoyed getting into character. Everyone looked terrific and your ‘chidlers’ looked great covering pretty much every rhyme and book we have in our Roald Dahl section in the library

  • Overseas |

    The City Cambodia Project 2017: Week 6

    26 Oct 2017

    In Cambodia there is not a Council that sets standards for things like progress notes and documentation. We realised the full effects of this today when we asked to see the speech notes of a patient who had been to the clinic four times previously. This made the session very difficult as there was no record of previous therapy or the speech sounds being targeted.

  • Fundraising Stories | Fundraising: Community |

    A Frighteningly Good #FundraisingFriday

    24 Oct 2017

    Mum-to-be Leanne has raised nearly £500 for CLAPA with her Halloween-themed bake sale - well done to Leanne and everyone who helped at East Riding College!

  • Fundraising Stories | Fundraising: Community |

    Rick – an in memorial pub crawl

    20 Oct 2017

    In August 1997, on the Bank Holiday Monday, Damien Honey and some of his friends met to take part in the Rick Parsons Memorial Pub Crawl, raising money for medical charities with a connection to Richard's condition.

  • Press Release |

    An Open Letter to Smile Train

    13 Oct 2017

    We at the Cleft Lip & Palate Association (CLAPA) were disgusted by Smile Train’s recent ‘halloween’ themed direct mailings. These mailings, which suggest that babies with unrepaired clefts are in some way ‘scary’ are deeply hurtful and offensive.

  • Fundraising Stories | Fundraising: Corporate |

    #FundraisingFriday – Bellway homes

    13 Oct 2017

    Margaret Soldani’s grandson, Noah Stafford, was born with a bilateral cleft lip in January, and has since had two successful operations at Birmingham Children’s Hospital to treat the condition. Margaret, who is the sales advisor at Bellway’s Orchard Place development in Evesham, said the support her family and Noah had received from CLAPA had been brilliant.

  • NHS Cleft Services | Speech |

    New Report Highlights Inequality in Speech & Language Therapy for Cleft Palate Children

    12 Oct 2017

    A new report shows shocking inequalities in speech and language therapy (SLT) provision across England, Wales and Northern Ireland. Join CLAPA in demanding that local SLT services are funded based on evidence and recommendations from experts, and help us ensure all children born with a cleft palate are given the best possible chances in life.