News
News and updates from across every CLAPA region
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Updates from CLAPA |
A Digital Future: CLAPA in 2021 and beyond
CLAPA has a new strategy for 2021-22. Read on to find out how we plan to keep you informed, connected, reassured and empowered throughout the next year.
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Fundraising Stories | Parent Stories | Your Stories |
Rebecca, Darren and Mason’s story
Throughout their son's cleft journey so far, Rebecca and Darren have received support from CLAPA, as well as healthcare professionals and their family and friends. They wanted to give back and recently set up a Facebook Fundraiser to support our work, raising a phenomenal £1035! Here’s their story.
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Research | Research Advertisements |
Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)
Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.
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Research | Research Summaries |
Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
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Children & Young People's Stories | Your Stories |
Hesed’s Story
Hesed was born with a cleft lip and palate and experienced difficulties with his speech for the first few years of his life. Now older and propelled on by quarantine, Hesed has recently created his very own YouTube channel called 'When Kids Talk' (with support from mum and dad)! Here's his story so far, as told by him.
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Adult Issues | Research | Research Summaries |
Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
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Research | Research Advertisements |
The Impact of Cleft-Related Communication Difficulties on Mental Health
A Speech and Language Therapy student from Manchester Metropolitan University is looking to interview people born with a cleft aged 18-25 as part of a dissertation project looking at the effects of a cleft on communication and its impact on mental health.
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Adult Stories | Fundraising Stories | Your Stories |
Sophy’s Taskmaster For CLAPA
Inspired by her favourite TV show, 'Taskmaster', Sophy decided to get her friends and family involved with CLAPA by organising a very fun and creative fundraiser! We caught up with her to find out how it all went.
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Parent Stories | Your Stories |
Georgia’s Story
Georgia's sons, Theo and Jude, were both born with a cleft, 6 years apart. In this powerful piece, Georgia looks back on her experiences of diagnosis, feeding and surgery, hoping to reassure other parents and carers who might be going through similar experiences.
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NHS Cleft Services |
Cleft Appointments During Lockdown
NHS Cleft Teams around the UK have reported that in the months since they’ve started to resume services, more people than usual are missing important appointments. These are known as ‘Did Not Attends’ (DNA) or ‘Was Not Brought’ (WNB) for children. We know there are many reasons why people might miss appointments or cancel them altogether, and together with the Cleft Teams we want to do what we can to help.
