News

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Updates from CLAPA |

CLAPA Welcomes New Chair of Trustee Board

25 Apr 2021

CLAPA is delighted to welcome Nick Astor as our new Chair of Trustees. Read more about Nick's history with the charity and his vision for CLAPA's future.

Jenny’s 5k run for CLAPA

16 Apr 2021

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Updates from CLAPA |

A Digital Future: CLAPA in 2021 and beyond

2 Apr 2021

CLAPA has a new strategy for 2021-22. Read on to find out how we plan to keep you informed, connected, reassured and empowered throughout the next year.

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Fundraising Stories | Parent Stories | Your Stories |

Rebecca, Darren and Mason’s story

26 Mar 2021

Throughout their son's cleft journey so far, Rebecca and Darren have received support from CLAPA, as well as healthcare professionals and their family and friends. They wanted to give back and recently set up a Facebook Fundraiser to support our work, raising a phenomenal £1035! Here’s their story.

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Research | Research Advertisements |

Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)

8 Mar 2021

Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.

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Research | Research Summaries |

Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions

4 Mar 2021

Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.

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Children & Young People's Stories | Your Stories |

Hesed’s Story

3 Mar 2021

Hesed was born with a cleft lip and palate and experienced difficulties with his speech for the first few years of his life. Now older and propelled on by quarantine, Hesed has recently created his very own YouTube channel called 'When Kids Talk' (with support from mum and dad)! Here's his story so far, as told by him.

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Adult Issues | Research | Research Summaries |

Research Summary: Interpersonal Relationships in Adults with Cleft

2 Mar 2021

CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.