News
News and updates from across every CLAPA region
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Research | Research Advertisements |
Research Opportunity: Feedback on theEUROlinkCAT Parent Survey Study
The EUROlinkCAT survey is part of a wider project investigating the health and educational needs and achievements of children living with conditions like cleft across Europe in the first 10 years of their lives. They are looking for parents and carers to give their feedback on this survey before its released to the public.
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Research | Research Advertisements |
Research Opportunity: Everyday experiences of adults with a visible difference
The study aims to learn more about the everyday experiences of those born with a visible difference, as well as the different types and forms of support/treatment that are available.
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Children & Young People's Stories | Parent Stories | Your Stories |
Poppy’s Story
10 year old Poppy, who was born with a cleft and Pierre Robin Sequence, recently placed 4th in the English School Nationals for running! She is sharing her story to inspire others to follow their dreams and do what they love.
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Fundraising Stories |
Koren’s Marathon for CLAPA
Koren decided to support CLAPA after seeing the difference our support made to her friend's family when their son Teddy was born with a cleft. We caught up with her to hear about her incredible fundraising efforts.
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CLAPA Blogs | Updates from CLAPA |
CLAPA in Lockdown: 6 Months On
6 months on from lockdown, we look back at what we've achieved thanks to the support of our incredible CLAPA Community.
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Research Summaries |
Summer Survey 2020: The Results
In July, we launched our 2020 Summer Survey which asked respondents about their general cleft-related concerns over the past few months, their experiences of remote cleft care, and finally about how we could support them both now and in the future. Since August, the results of this survey have been guiding our work and we're continuing to put plans in place to tackle some of the issues you've raised. In this report, we want to share some of these results and our plans with you.
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A parent’s experience of a late cleft palate diagnosis
Adapting to the unique challenges of having a baby with a cleft palate can be stressful for any parent or carer. But how does it feel to cope with these challenges if they can't be explained? These days, most cleft palates are spotted within 48 hours of birth, so families can get the specialist support they need right away. But, for Mandy, getting a diagnosis for her son took five years.
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Fundraising Stories |
Rob’s Marathon for CLAPA
Over the years, Rob and his wife have received support from CLAPA throughout their son's cleft journey. Rob decided he wanted to give something back and planned to run the Edinburgh marathon this year. After this was postponed due to Coronavirus, he was undeterred! He organised his very own challenge, running the Isle of Wight marathon route with some friends and helpers, and has managed to raise a remarkable £1,000 for CLAPA!
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Diagnosis |
New Guidelines for Sonographers Published
For the first time, sonographers will be trained to use specific words and phrases to be used when explaining unexpected news to expectant parents in the UK.
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CLAPA’s Superhero Challenge
Calling all budding artists, creators, drawers and colour-in-ers – we have a challenge for you! With this step-by-step video, kindly created by comic artist Andrew (@cartoonisidrew on social media), we are challenging you to draw your very own cartoon superhero!
