News
News and updates from across every CLAPA region
-
Research | Research Advertisements |
Research Opportunity: Parents’ & carers’ experiences of children with appearance-affecting conditions
A new research project is investigating ways to support parents and carers of children and young people affected by appearance affecting conditions/injuries, such cleft lip.
-
NHS Cleft Services | Updates from CLAPA |
Summer Survey 2020: Now Closed
Are you personally affected by cleft? Could you take 10 minutes to help us better support the UK cleft community by telling us how the lockdown has affected you?
-
Fundraising: Trusts & Foundations | Press Release | Updates from CLAPA |
Cash boost for CLAPA
Today, we are delighted to announce CLAPA has been awarded £10,000 of emergency funding, which will help us to continue meeting the needs of the cleft community.
-
Research | Research Advertisements |
Research Opportunity: Parents Experiences of Decision-Making About Orthognathic Surgery
A researcher with the University of East Anglia is hoping to interview parents of those who have undergone orthognatic surgery, also called 'jaw surgery' or an 'osteotomy'. This is to learn more about how parents experience the decision-making process around this surgery, with the hopes that it will feed into the NHS treatment pathway.
-
Adult Stories | Your Stories |
Susan’s story
Following an unsuccessful surgery when she was very young, Susan attempted to have her cleft palate repaired by surgeons many times throughout her life. It wasn't until she was in her 40s when this finally happened. Here's her incredible story.
-
NHS Cleft Services |
Resumption of Cleft Services
The Cleft Development Group (CDG) has passed on the following statement for the UK cleft community on how the NHS plans to safely resume cleft services during the coronavirus pandemic.
-
Fundraising Stories | Parent Stories | Pierre Robin Sequence | Your Stories |
Clare’s Story
After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!
-
Fundraising Stories |
Laura and the Deeside Ladies Circle
The Deeside Ladies Circle recently made an amazing donation of £750 to CLAPA! We caught up with one of the group’s members, Laura, to find out more about the circle and why they chose to support CLAPA.
-
Parent Stories | Your Stories |
Eleanor’s Volunteer Story
This Volunteers' Week, we are celebrating our dedicated volunteers. Without them, so much of our work would simply not be possible. Eleanor is one of our fantastic Parent Supporters, and here's her story.
-
Fundraising Stories | Parent Stories | Your Stories |
Sophie and Alfie’s Challenge
During Awareness Week, Sophie and her son Alfie raised over £1,000 for CLAPA! Sophie told us about their incredible fundraising and has kindly shared her family's story so far.
