News
News and updates from across every CLAPA region
-
Adult Issues |
Adult Services Project: An Update
Don’t let the name fool you, the Adults Services Programme is still down with the kids. Starting this month, we’re trying an innovative new way of delivering information - online panel discussions!
-
Cleft Lip and Palate | Parent Stories | Your Stories |
#MyCleftStory a year on, through the eyes of Casper’s mummy
"What did that mean? Did that mean Casper would need more palate surgery? Did that mean Casper’s speech would still not develop? Again, I was overwhelmed and hit by a pang of too many emotions and my role of mummy being tested." In honour of Awareness Week, Jemma shared with CLAPA her experiences with her son, Casper over the past year.
-
Adult Issues | Adult Stories | Cleft Lip and Palate | Your Stories |
Denise’s Story
All the treatment was being geared up towards the operation to close Kenny’s cleft lip at 3 months of age. Initially, that operation couldn’t come quick enough, but by the time he was 3 months old, I’d grown accustomed to how he looked and was a bit fearful of the change. Our son was a smiley, happy, very content baby. It seemed wrong that he had to go through this.
-
NHS Cleft Services | PRS |
Pierre Robin Sequence Study for Trent Region Families
The Nottingham-based Trent Cleft Service are putting together a set of resources for families affected by Pierre Robin Sequence. Can you help them by completing a short online survey?
-
Young People |
CLAPA Kids’ Sunshine Club: LAUNCH PARTY!
CLAPA Kids' Sunshine Club has been created by seven-year-olds Sophie Mae Ria and eight-year-old Macey — along with the help of a few family and friends. They're hoping to meet lots of other children affected by cleft and their families at their special launch event and family fun day on Saturday 18th May 2019.
-
Children & Young People's Council | Children & Young People's Stories |
Aleisha Inspires UK to #DoMoreGood
10-year-old Aleisha has been chosen to represent CLAPA at this year's CarFest, the family festival created by radio presenter Chris Evans.
-
CLAPA Blogs | Updates from CLAPA |
CLAPA is Moving!
After 15 years in Angel Islington, CLAPA's office is moving to a charity hub in Bethnal Green, East London. Read more to find out how this will impact our services, and to join us in reflecting back on our time on Goswell Road.
-
Research | Research Advertisements |
Research Advert (Yorkshire and the Humber): Exploring young adults’ experiences of growing up with a facial difference
Are you a young person aged between 18 –25? Do you identify as having a facial difference? Do you have a story to tell about your experiences of growing up? This could be the research project for you.
-
Fundraising Stories | Fundraising: Challenges | Fundraising: Runs |
#FundraisingFriday: Camilla’s Story
Camilla has been kind enough to share her exciting fundraising plans with CLAPA. She's running not one race, but five, all in support of our vital services.
-
Patient Voices | Research | Research Advertisements | Research Summaries | Volunteering Opportunities |
A Day at the Cleft Collective
On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.
