Groups where you can use your voice to help shape, support, and guide CLAPA to deliver the right services for the UK's cleft community. There are also opportunities to get involved in groups reviewing larger research projects and NHS initiatives.
The voice of the UK cleft community is at the heart of all we do at CLAPA. From developing new services and shaping our messaging to collaborating with researchers, we want the cleft community to be involved every step of the way.
This page lists opportunities for you to use your voice to impact on CLAPA’s services and strategy, as well as other longer-term opportunities to impact on cleft care.
We want to make our community as inclusive as possible. Our groups are currently underrepresented by people from ethnic minorities, men, people of colour, and people who follow religions other than Christianity. If you represent any of these groups, we strongly encourage you to get involved so that your voice is heard.
CLAPA’s Children and Young People’s Council (CYPC) are a group of 12-17 year olds who were born with a cleft from all around the UK. They meet up regularly to help shape CLAPA’s work and give feedback to cleft researchers and the NHS.
Join CLAPA’s online Young Adults Group (ages 18-25) to meet other adults and discuss topics like gaps in services, recent experiences, ideas for improving services, and much more.
Join the Cleft Development Group’s Patient Engagement Group (CDG PEG) to help shape the future of NHS cleft services in the UK.
