Our legacy promise: your gift will help the cleft community thrive—not just survive
The Impact of Your Legacy
Your gift will help build a future where:
- Families receive guidance from the very first moment.
- Young people grow up confident and self-advocating.
- Peer support networks thrive, reducing isolation and fear.
- Cleft care is not only accessible—but compassionate and inclusive.
Your compassion will live on through:
- Trusted information for new parents navigating diagnosis.
- Emotional support for children and adults adjusting to life with a cleft.
- A strong, inclusive community that empowers every voice.
When my father passed away, my mother and I were very pleased to learn that he had decided to leave a gift to CLAPA in his will.Jon Clarke, Supporter
I’m strongly encouraging other families affected by cleft lip and/or palate to consider leaving a gift in their will to CLAPA, to support its work in the future.
Frequently asked questions
A codicil should be used for small changes such as including a gift in your Will to CLAPA. However if you’re making significant changes we would advise writing a new Will instead. If you do choose to use a codicil then you should store it alongside your Will so your executors don’t miss it.
Leaving 10% or more of your estate to charity typically reduces the rate of any Inheritance Tax payable from 40% to 36%. We recommend that you speak to a legal or tax advisor about how the Inheritance Tax rules apply to you and your particular circumstances. As a charity we’re not able to offer legal or tax advice.
We are happy to discuss this, however, it’s a good idea to not restrict your gift too tightly as in the future we may not be running that specific project, as we respond to the changing needs of the cleft community. We recommend you express your wishes in the form of a non-binding wish by saying “it is my wish but without creating any legally binding obligation that…”
Yes, Muslims can leave up to a third of their estate to beneficiaries who will not be a fixed inheritor, such as CLAPA. And by leaving a gift in your Will to us, you can pass on the gift of family to others. Your gift could be an act of Sadaqah Jariyah (ongoing charity that continues after one passes away) supporting families for generations to come.
It’s completely up to you whether you would like to tell us about your gift, we realise that it’s a private matter for some. We always love having the opportunity to thank our supporters as well as keeping them up to date with our work.
- A share of your estate – After you have provided for your loved ones, you can leave a share of what remains to charity. This is known as a ‘residuary gift’.
- A cash gift – This is when you leave an exact sum of money to us. It’s known as a ‘pecuniary gift’.
- A specific gift – Over the years we’ve received everything from a stream to antique jewellery.
- A gift in trust – You can leave a gift for someone to use over a period of time. When the time has ended, the gift can be passed on to other recipients, such as a charity.
If you would like to leave a gift in your Will to the cleft community, we strongly recommend you that you speak to a solicitor to ensure that your wishes will be carried out as you intend.
You will need to take the following details with you:
CLAPA
Registered address: The Green House, 244-254 Cambridge Heath Road, LONDON, E2 9DA
Registered charity number: (1108160 England and Wales), Scotland (SC041034)
An example of wording you could use:
I leave X / a X% share of my residuary estate for CLAPA, The Green House, 244-254 Cambridge Heath Road, LONDON, E2 9DA (registered charity number 11084160) for its general charitable purposes and I declare that the receipt of the proper officer for the time being of the said charity shall be a sufficient discharge to my executors.
If you have any questions about adding a gift to your will, please get in touch
We respect your privacy, and there is no need to share any details with us. However, if you are happy to tell us you will be remembering CLAPA in your will, then we would really like to say thank you and keep in touch with you about our work.
Please contact our Head of Income, Mikaela Conlin-Hulme at [email protected] or phone 07568 774998 .
Help for executors and solicitors
We’ve provided some guidance if you’re an executor for someone who has left a gift in their Will to CLAPA.
We hope the information below is useful, but if you need more guidance, particularly if you are not a professional executor (for example, you are not a solicitor) and the process is unfamiliar to you, visit the Institute of Legacy Management (ILM) website for guidance for lay executors.
If you need further support, please email [email protected].
Paying in a legacy gift
Prior to paying in any money left in a Will, it is helpful if you can email [email protected] with the following information:
- Your details
- Details of the deceased, such as name and last known address
- A description of the gift
- A copy of the Will
- Any information on the motivations behind why the gift was left to us
For how to pay in your gift please visit pay in money
Other names and addresses
We changed our working name to Cleft Lip and Palate Action (CLAPA) in February 2026.
Other ways in which we are commonly named in a will are:
- Cleft Lip and Palate Association (CLAPA) – our legal name
- CLAPA (our acronym)
Our registered address is often used in the will. The Green House, 244-254 Cambridge Heath Road, LONDON, E2 9DA
The will could use an old address. Our previous addresses include:
- Green Man Tower, 332B Goswell Road, London EC1V 7LQ