News and Stories

Kevin and Sanjana share their journey from finding out their son Arin would be born with a cleft.

Two Januarys ago, Ben started running - and participated in his first Ironman triathlon last September, raising more than £3,300 for CLAPA.

The Cleft Registry and Audit NEtwork (CRANE) is a national database that collects information about children born with cleft lip and/or palate across the UK.

Somerset cricketer Tom Kohler-Cadmore has been raising awareness for cleft, after he and his wife Melissa Avison found out their son, Dougie, had a cleft lip and palate at their 20-week pregnancy scan.

Sam, Ben and Nick – aka The Engine, The Red Squirrel, and The Drafter – are setting out on their bikes from Land’s End to John O’Groats (LEJOG) to raise funds for CLAPA, on Saturday, August 16. 

CLAPA’s logo has been speeding around Silverstone and Brands Hatch, viewed by thousands of spectators – thanks to race enthusiast and dad Jack, whose son Luke was born with a cleft.

Lacie-Jo’s journey: A story of strength, love, and resilience, written by her mum, Rebecca. 

When Matt and his wife Katie were told their second child would be born with a cleft lip they were overwhelmed, and turned to CLAPA for much-needed information about the often misunderstood condition.

Little Teddy had a taste of luxury on-set life when he was cast as ‘Baby Emily’ in BBC’s Casualty, raising awareness for cleft lip and palate.

A big thank you to the record nine walkers from our community north of the border, who’ve signed up for a Kiltwalk to raise funds for CLAPA this year.

Two-year-old Oakley has Apert Syndrome, a rare genetic condition that causes fusion of the skull, hands and feet bones. He was also born with a large cleft palate, which saved his life when his other airways became obstructed.

Sarah Mahone got in touch with CLAPA dring Cleft Lip and Palate Awareness Week to share her journey with her son Luca, who was born with a microform cleft lip.