News and Stories

The Cleft Registry and Audit NEtwork (CRANE) is a national database that collects information about children born with cleft lip and/or palate across the UK.

Two-year-old Oakley has Apert Syndrome, a rare genetic condition that causes fusion of the skull, hands and feet bones. He was also born with a large cleft palate, which saved his life when his other airways became obstructed.

Next time you’re out shopping look up at the video boards and you might just see one of our CLAPA community babies advertising Pampers nappies.

In celebration of all our wonderful CLAPA grandparents we spoke to Audrey and Dave about their cleft journey with granddaughter Rebecca.