Kevin, Sanjana and Arin’s story
Kevin and Sanjana share their journey from finding out their son Arin would be born with a cleft.
News and Stories
Read news, stories and updates from CLAPA and the UK's cleft community.
Join the Cleft Development Group Patient Engagement Group (CDG PEG)
The Cleft Development Group (CDG) has representatives from all NHS Cleft Teams in the UK. Its purpose is to ensure the highest quality of cleft care for all patients who need it. CLAPA supports the CDG with its Patient Engagement Group (PEG) to ensure the voice of the cleft community is heard in CDG meetings.
Happy International Nurses’ Day with cleft nurse, and CLAPA trustee, Izzy
International Nurses’ Day is a day to recognise the vital contribution nurses make to our lives. And one of these celebrated nurses is cleft clinical nurse specialist, and CLAPA trustee, Izzy.
“My cleft palate has shaped me into who I am today – and I wouldn’t change it!”
CLAPA volunteer and former CYPC member Izzy has turned her experiences of being born with a cleft palate into a passion for working in the medical industry.
Society president talks to CLAPA ahead of ground-breaking conference
The 40th annual Craniofacial Society of Great Britain and Ireland (CFSGBI) Conference will have a very different feel this year – with more than 30 people with lived experience of cleft involved in the programme.
CLAPA Annual Survey 2023: Results
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
CLAPA Annual Survey 2022: Results
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
CLAPA Annual Survey 2021: Results
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
CLAPA Annual Survey 2020: Results
In July 2020, CLAPA launched a survey which asked respondents about their general cleft-related concerns over the past few months, their experiences of remote cleft care, and finally about how we could support them both now and in the future. Here are the results of this survey.