News and Stories

Two Januarys ago, Ben started running - and participated in his first Ironman triathlon last September, raising more than £3,300 for CLAPA.

“When they look in my mouth, I usually get the wide-eyed look of horror and sharp intake of breath. And then they say, ‘you're a complicated case’.”

After running an epic 10 fundraising marathons in 10 days – wearing a 10 kg weighted vest – Pete has donated a tenth of his proceeds to CLAPA. 

Sam, Ben and Nick – aka The Engine, The Red Squirrel, and The Drafter – are setting out on their bikes from Land’s End to John O’Groats (LEJOG) to raise funds for CLAPA, on Saturday, August 16. 

Two-year-old Oakley has Apert Syndrome, a rare genetic condition that causes fusion of the skull, hands and feet bones. He was also born with a large cleft palate, which saved his life when his other airways became obstructed.

Three years since Harper-Lily was born, her parents reflect on their daughter's journey and why dad Callum has decided to take on a charity boxing match to raise funds for CLAPA.

Sarah Mahone got in touch with CLAPA dring Cleft Lip and Palate Awareness Week to share her journey with her son Luca, who was born with a microform cleft lip.

Sophie was born with a holoprosencephaly, which can cause a cleft lip and palate. She spoke to CLAPA about growing up with a cleft and using her experiences to help others.

On Sunday 13th April, Warren George and Cora Lavesini-George ran the Rotterdam Marathon for CLAPA, after their eldest daughter was born with a cleft palate.

Jerry-Leigh’s son Charlie was born with a rare Tessier facial cleft. She wanted to raise awareness of his condition and share her story with the wider cleft community.