Read news, stories and updates from CLAPA and the UK's cleft community.
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
Jerry-Leigh’s son Charlie was born with a rare Tessier facial cleft. She wanted to raise awareness of his condition and share her story with the wider cleft community.
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with surgical, dental and psychological treatment. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with interpersonal relationships, including family and romantic relationships. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
In July 2020, CLAPA launched a survey which asked respondents about their general cleft-related concerns over the past few months, their experiences of remote cleft care, and finally about how we could support them both now and in the future. Here are the results of this survey.
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their emotional wellbeing. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
CLAPA's 2018 Adult Engagement Roadshow was a series of 12 focus groups in different centres across the United Kingdom. The groups were made up of adults born with a cleft, with an aim of understanding the needs of the UK's adult cleft community.
