CLAPA Launches new Cleft++ Mentoring Service
Cleft++ Mentoring Service aims to support young people born with a cleft in this new and exciting project.
This page explains how the project came about and what the name means to us.
News and Stories
Read news and stories from CLAPA and the UK's cleft community, and find opportunities to get involved.
CLAPA Annual Survey 2022: Results
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
Jerry-Leigh’s Story
Jerry-Leigh’s son Charlie was born with a rare Tessier facial cleft. She wanted to raise awareness of his condition and share her story with the wider cleft community.
CLAPA Annual Survey 2021: Results
CLAPA’s Annual Survey is designed to give us a snapshot of your needs, priorities and concerns. As a small charity, we have to plan carefully to focus our limited resources where they’ll make the biggest difference. By completing this survey, you’ve helped us make sure our plans include you!
Treatment Decision Making in Adults with Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with surgical, dental and psychological treatment. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with interpersonal relationships, including family and romantic relationships. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
CLAPA Annual Survey 2020: Results
In July 2020, CLAPA launched a survey which asked respondents about their general cleft-related concerns over the past few months, their experiences of remote cleft care, and finally about how we could support them both now and in the future. Here are the results of this survey.
Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their emotional wellbeing. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
Adults’ Project Roadshow Report
CLAPA's 2018 Adult Engagement Roadshow was a series of 12 focus groups in different centres across the United Kingdom. The groups were made up of adults born with a cleft, with an aim of understanding the needs of the UK's adult cleft community.