Shaping the Parent & Peer Support Service Together

Join us for session on how we can develop our Parent & Peer Support Service on Tuesday 20th October at 7.15pm (online). This event is for adults born with a cleft and parents/carers of a child born with a cleft in the United Kingdom.

Register now

Help us shape our Parent & Peer Support Service

Are you an adult born with a cleft or a parent or carer of a child born with a cleft?

We’d love to hear from you, whether or not you have previously used our Parent & Peer Support Service.

We’re inviting you to an informal online co-production session to help us shape the service and make sure it works for the people it is there to support. Co-production simply means developing a service with the people who use it, rather than designing it for them.

You don’t need any previous knowledge or experience – your perspective is what matters. Share your ideas, tell us what would have helped you at a particular point in your own or your family’s journey, and help us make this service better for others.

Register now

Taking part in this event

  • This is an online event

    This is an online video event and we will send the link to join the event the day before, to the email address you use to register for this event.

    Please check your spam/junk folders to ensure you don't miss the link.

  • You don't have to join in

    If you'd like to hear from others but you'd prefer not to take part in the informal chat, you are very welcome to come along and listen to the discussion.

  • Tell us how we can help

    If you have any access requirements, or if there's anything else we can do to make you feel more comfortable and welcome at the event, please let us know when you sign up.

  • Accompanied children can join

    Children are welcome to join but must be accompanied for the duration by a parent/carer. If you have children around please don't feel you need to have a private quiet space, as we can mute your microphone unless you are speaking.

  • Follow the rules

    Read the 'Ground Rules' below before registering. A CLAPA staff member or volunteer will contact you directly if you breach any of these rules. If you repeatedly breach these rules, we will remove you and you will not be able to attend any future CLAPA events.

Ground rules for online events

Cleft Lip and Palate Action (CLAPA) is committed to ensuring our online events are safe spaces where everyone feels comfortable sharing their experiences and asking questions. We ask everyone attending to read and follow these ground rules.

We ask that everyone is respectful of others’ feelings, views and opinions.

We’re here to listen, share our experiences, ask questions, gain information, and support each other so that everyone leaves the session having had a positive experience.

The format we follow for events ensures there is time to ask questions and share your own experiences and feelings.

Please allow everyone to take their turn and be mindful of sharing the space and time available so that everyone who wants to contribute can do so.

We recognise not everyone feels comfortable contributing to discussions and there is no pressure to do so.

During this session, participants’ cameras and microphones will be switched off. If you would like to share information, please use the chat function.

It’s okay if you need to attend to other duties (children, pets, etc.) during the event.

More events from CLAPA

Check out these other upcoming events for the UK cleft community

Babble Play Skills

This event is for parents of children born with a cleft in the United Kingdom. You are welcome to join with or without your child/ren.

Antenatal Support Group

This event is for new and expectant parents and grandparents of a baby born with a cleft lip and/or palate in the United Kingdom.