Read news and stories from CLAPA and the UK's cleft community, and find opportunities to get involved.
In this research paper, Kingston University researchers explore the process of resilience for children with a cleft lip and/or palate (visible difference) starting secondary school in the United Kingdom.
Researchers at Newcastle University are looking to speak to people with lived experience of cleft palate (born with or without cleft lip) to explore why children born with a cleft have poorer school outcomes than other children of the same age.
Doctors and scientists based at Great Ormond Street Hospital, University College London and the Wellcome Sanger Institute near Cambridge are planning research into new genetic causes of cleft.
Researchers at the University of Oxford are looking who have been involved in clinical discussions about head and/or face surgery on children for aesthetic reasons, either as the child, the parent/carer or the health care professional.
Researchers at the University of Lancashire are looking for participants to take part in a research project looking at the experiences of autistic adults born with a cleft.
Do you want to use your voice to help shape, support, and guide CLAPA to deliver the right services for adults born with a cleft in the UK? Join CLAPA’s online Young Adults Group (ages 18-25) to meet other adults and discuss topics like gaps in services, recent experiences, ideas for improving services, and much more.
The Cleft Registry and Audit NEtwork (CRANE) is a national database that collects information about children born with cleft lip and/or palate across the UK.
The Cleft Development Group (CDG) has representatives from all NHS Cleft Teams in the UK. Its purpose is to ensure the highest quality of cleft care for all patients who need it. CLAPA supports the CDG with its Patient Engagement Group (PEG) to ensure the voice of the cleft community is heard in CDG meetings.
The 40th annual Craniofacial Society of Great Britain and Ireland (CFSGBI) Conference will have a very different feel this year – with more than 30 people with lived experience of cleft involved in the programme.
SURVEY NOW CLOSED. In the last few years, we’ve heard from many of you who’ve had problems accessing NHS dental care, especially for cleft-related issues. We want to learn more about the kind of problems you’ve been having so we can better understand how to help.
An Indian storytelling event for a festival called Navarathri/Dussehra has raised hundreds of pounds for CLAPA.
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with surgical, dental and psychological treatment. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
