CRANE 2025 Annual Report: Summary for the cleft community
The Cleft Registry and Audit NEtwork (CRANE) is a national database that collects information about children born with cleft lip and/or palate across the UK.
News and Stories
Read news, stories and updates from CLAPA and the UK's cleft community.
Join the Cleft Development Group Patient Engagement Group (CDG PEG)
The Cleft Development Group (CDG) has representatives from all NHS Cleft Teams in the UK. Its purpose is to ensure the highest quality of cleft care for all patients who need it. CLAPA supports the CDG with its Patient Engagement Group (PEG) to ensure the voice of the cleft community is heard in CDG meetings.
Society president talks to CLAPA ahead of ground-breaking conference
The 40th annual Craniofacial Society of Great Britain and Ireland (CFSGBI) Conference will have a very different feel this year – with more than 30 people with lived experience of cleft involved in the programme.
Survey: Access to NHS Dental Care
SURVEY NOW CLOSED. In the last few years, we’ve heard from many of you who’ve had problems accessing NHS dental care, especially for cleft-related issues. We want to learn more about the kind of problems you’ve been having so we can better understand how to help.
Celebration of Indian festival raises funds for CLAPA
An Indian storytelling event for a festival called Navarathri/Dussehra has raised hundreds of pounds for CLAPA.
Treatment Decision Making in Adults with Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with surgical, dental and psychological treatment. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their experiences with interpersonal relationships, including family and romantic relationships. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).
Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' Survey in 2018 was a comprehensive questionnaire for adults in the UK born with a cleft. This research paper looks at the responses people gave about their emotional wellbeing. This paper was first published in the Cleft Palate Craniofacial Journal (CPCJ).