News and Stories

We’re looking for a new Involvement Coordinator.

We’re looking for a new Youth Engagement Coordinator.

Researchers at Newcastle University are looking to speak to people with lived experience of cleft palate (born with or without cleft lip) to explore why children born with a cleft have poorer school outcomes than other children of the same age.

Doctors and scientists based at Great Ormond Street Hospital, University College London and the Wellcome Sanger Institute near Cambridge are planning research into new genetic causes of cleft.

We’re looking for a new Brand, Communications and Creative Trustee.

Researchers at the University of Oxford are looking who have been involved in clinical discussions about head and/or face surgery on children for aesthetic reasons, either as the child, the parent/carer or the health care professional.

Researchers at the University of Lancashire are looking for participants to take part in a research project looking at the experiences of autistic adults born with a cleft.

Do you want to use your voice to help shape, support, and guide CLAPA to deliver the right services for adults born with a cleft in the UK? Join CLAPA’s online Young Adults Group (ages 18-25) to meet other adults and discuss topics like gaps in services, recent experiences, ideas for improving services, and much more.

The Cleft Development Group (CDG) has representatives from all NHS Cleft Teams in the UK. Its purpose is to ensure the highest quality of cleft care for all patients who need it. CLAPA supports the CDG with its Patient Engagement Group (PEG) to ensure the voice of the cleft community is heard in CDG meetings.

SURVEY NOW CLOSED. In the last few years, we’ve heard from many of you who’ve had problems accessing NHS dental care, especially for cleft-related issues. We want to learn more about the kind of problems you’ve been having so we can better understand how to help.